VEDS Medical Research Guide
Comprehensive Overview of vEDS Findings
Genetics in Medicine Journal, 2014
Information about Genetic Testing for VEDS
University of Washington
The VEDS Movement
In 2019, the Marfan Foundation created a dedicated branch of their organization for VEDS. Since then, the VEDS Movement has become a leading voice for the VEDS community and has developed many great resources including support groups, a community match program, and support staff to answer medical questions and provide information on knowledgeable doctors in your area.
The Ehlers Danlos Society
The Ehlers Danlos Society is a global organization serving patients of all 13 types of Ehlers Danlos Syndrome. Visit their website to see their numerous research initiatives, including those focused on VEDS, and find links to scientific and medical articles and other resources.
Find helpful articles written in layman's terms about the latest research on VEDS, and learn how they can assist you with VEDS genetic testing.
The VEDS Collaborative is a united group of patients, family members, researchers, and clinicians dedicated to developing a patient-centered plan for scientific research to improve the management of Vascular Ehlers Danlos Syndrome. This group is currently enrolling patients for a natural history study - sign up here!
A UK-based nonprofit organization that raises funds for research, conducts awareness campaigns, and offers support and medical advice for those living with VEDS.
A Texas-based VEDS nonprofit organization working to raise awareness of VEDS.
A Youtube channel created by vlogger and podcaster, Katie Wright, that discusses the struggles of daily life with VEDS.