VEDS Medical Research Guide
Comprehensive Overview of VEDS Findings
Information about Genetic Testing for VEDS
University of Washington
Find information about the latest research on vEDS, as well as many patient resources, including genetic testing help and a "Find a Doctor" tool.
A united group of patients, family members, researchers, and clinicians dedicated to developing a patient-centered plan for scientific research to improve the management of vascular Ehlers-Danlos Syndrome.
A UK-based vEDS nonprofit organization that raises funds for research, conducts awareness campaigns, and offers support and advice for those living with vEDS.
A Texas-based vEDS nonprofit organization working to raise awareness of vEDS.
A Youtube channel created by vlogger and podcaster, Katie Wright, that discusses the struggles of daily life with vEDS.