Helpful Links

​The VEDS Movement
In 2019, the Marfan Foundation created a dedicated branch of their organization for VEDS. Since then, the VEDS Movement has become a leading voice for the VEDS community and has developed virtual support groups, a community connect program, emergency resources, webinars, a certified CME course, and much more.
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FightvEDS.org
Find helpful articles about the latest research on VEDS, and learn how they can assist you with VEDS genetic testing.
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​Annabelle's Challenge
A nonprofit organization that conducts awareness campaigns and offers support and medical advice for those living with VEDS in the UK and Australia.

The Ehlers Danlos Society
The Ehlers Danlos Society is a global organization serving patients of all subtypes of Ehlers Danlos Syndrome. Visit their website to see their numerous research initiatives, including those focused on VEDS, and find links to medical information and patient support resources. 

Upcoming Clinical Trials for VEDS
Information on the two upcoming clinical trials by Acer Therapeutics and Aytu Biopharma to study potential treatment options for VEDS  can be found by following the links below:
Acer Therapeutics DiSCOVER Trial: https://discoverceliprolol.com/
Aytu Biopharma PREVEnt Trial: https://aytubio.com/pipeline/ar101-enzastaurin/