REDS4VEDS  | Friday, May 21st, 2021

Started by Annabelle's Challenge, a nonprofit doing incredible work for the vEDS community in the UK, REDS4VEDS Day is a global awareness campaign to spread the word about vEDS! Getting involved is as easy as putting on something red, snapping a picture, and sharing it on social media with #REDS4VEDS! To learn more, please visit: https://www.annabelleschallenge.org/about-us/reds4veds-day

Driving for DEFY | Saturday, July 17th, 2021

Over the last six years, our Driving for DEFY event has raised almost $60,000 to support research and awareness on behalf of all those living with VEDS! We look forward to another great event at Pigeon Creek Golf Course in West Olive, Michigan complete with golf, raffles, and building community! To register, click here. 

Not a Moment to Spare - Rolling for a Cure | Fall 2021

Since we had to postpone our 2020 event, we are even more excited to bring this event back to Philadelphia in the fall of 2021! Look out for more information to come!