Driving for DEFY Golf Outing | Saturday, July 13th, 2019
Calling all our midwest friends! Last year's event raised almost $8,000 for vEDS research - can you help us make this year's event even bigger? If you are interested in golfing, being a sponsor, or donating raffle items, please email Clara Klap at claraklap@yahoo.com!
3rd Annual Vascular Ehlers Danlos Syndrome Scientific Meeting | Saturday, August 3rd, 2019
Thanks to your support and generosity over the last year, we will once again be bringing together researchers and clinicians from across the globe to share, discuss and plan for the future of vEDS research! This scientific meeting will be held in conjunction with the Ehlers Danlos Society's Global Learning Conference in Nashville.
To ensure that we are fostering an environment of confidentiality and open sharing among the researchers, this meeting will be reserved for members of the scientific community. We will be sharing a meeting summary as soon as this is available!
To ensure that we are fostering an environment of confidentiality and open sharing among the researchers, this meeting will be reserved for members of the scientific community. We will be sharing a meeting summary as soon as this is available!
Not a Moment to Spare - Rolling for a Cure | Saturday, September 14th, 2019
Join us at South Bowl in Philadelphia for an evening of bowling, raffles, food, drinks, and fun! For more information, and to register for, or donate to, this event, please go to https://defyfoundation.ticketleap.com/bowl/. Together, let's strike out vEDS!