REDS4VEDS  | Friday, May 15th, 2020

Started by Annabelle's Challenge, a nonprofit doing incredible work for the vEDS community in the UK, REDS4VEDS Day is a global awareness campaign to spread the word about vEDS! Getting involved is as easy as putting on something red, snapping a picture, and sharing it on social media with #REDS4VEDS! To learn more, please visit: https://www.annabelleschallenge.org/about-us/reds4veds-day

Driving for DEFY | Saturday, July 18th, 2020

Our 6th Annual Driving for DEFY Golf Outing will be taking place at Pigeon Creek Golf Course in West Olive, Michigan! Join us for a day of golf, contests, raffles, and fun with supporters and members of the VEDS community! To register to golf, or to become a corporate sponsor, click HERE! ​To read our statement regarding this event in light of the COVID-19 situation, please click HERE. 

Not a Moment to Spare - Rolling for a Cure | Saturday, October 10th

After the success of last year's kickoff event, we are excited to announce the return of our Not a Moment to Spare - Rolling for a Cure bowling event at South Bowl in Philadelphia! Stay tuned for registration information!