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  • Home
  • About
    • About VEDS and DEFY
    • Press
    • Board of Directors
  • Helpful Links
  • Red Pants
  • Events
  • Scientific Meetings
    • 2018 VEDS Scientific Meeting
    • 2019 VEDS Scientific Meeting
    • 2021 VEDS Scientific Meeting
    • 2022 VEDS Scientific Meeting
  • Donate
  • Contact
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2022 Events

REDS4VEDS  | Friday, May 20th, 2022 ​| Virtual

Started by Annabelle's Challenge, an organization doing incredible work for the VEDS community in the UK, REDS4VEDS Day is a global awareness campaign to spread the word about VEDS! Getting involved is as easy as putting on something red, snapping a picture, and sharing it on social media with #REDS4VEDS! To learn more, click here. 

Walk for Victory | Saturday, June 11th, 2022 ​| Philadelphia, PA

Hosted by the Marfan Foundation, the Walk for Victory is a global walk program that brings the Marfan, Loeys-Dietz (LDS), Vascular Ehlers Danlos Syndrome (VEDS), and related conditions community together. For more information on the Philadelphia Walk for Victory, and to register as part of Team DEFY, please click here.

Driving for DEFY | Saturday, July 16th, 2022 ​| West Olive, MI

Over the last seven years, our Driving for DEFY event has raised almost $90,000 to support research and awareness on behalf of all those living with VEDS! We look forward to another great event at Pigeon Creek Golf Course in West Olive, Michigan complete with golf, raffles, and building community! Register here! 

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