Press Releases

Let's make this rare disease a household word.
USA Today, October 2020
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Same disease kills 5 family members; boy, 9, diagnosed
Wood TV, July 2016

​Donning red pants for a friend, a family, and a cause
Philadelphia Inquirer, March 2016

DEFY Foundation first of its kind
Daily Local News, April 2015

Genetic disease kills 5 men in family
Wood TV8, December 2014