DEFY
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  • Home
  • About
    • About VEDS and DEFY
    • Press
    • Board of Directors
  • Helpful Links
  • Red Pants
  • Events
  • Scientific Meetings
    • 2018 VEDS Scientific Meeting
    • 2019 VEDS Scientific Meeting
    • 2021 VEDS Scientific Meeting
    • 2022 VEDS Scientific Meeting
  • Donate
  • Contact
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YOUR CART

Press Releases

Let's make this rare disease a household word.
USA Today, October 2020
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Same disease kills 5 family members; boy, 9, diagnosed
Wood TV, July 2016

​Donning red pants for a friend, a family, and a cause
Philadelphia Inquirer, March 2016

DEFY Foundation first of its kind

Daily Local News, April 2015

Genetic disease kills 5 men in family
Wood TV8, December 2014

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